Good News Today

It is Monday, May 24, 2010, and today I went to see the surgeon who did my lumpectomy last week and got the news: NO CANCER.
Then Alice brought me home and we watched "Death at a Funeral" (British version).
It has been a very good day.

I Am No Longer Unemployed

Today was a milestone: I have been unemployed since the summer of 2007, but today that changed. Today I retired.
It wasn't as easy as they'd like to make you think when you go to the Social Security website. They have videos featuring Patty Duke and Chubby Checkers – talkin' about my g-g-generation – telling us how quick and easy it is to retire online. Do it now! It's easy!
It's easy if you aren't as easily confused as I am. I tried to retire last March, because I'd been told to apply a couple of months before I turned 62. Being the good girl I am, I went online and began the easy process.
It was easy right up until they asked, “Are you able to get a job?” I said, “No.”
Big mistake: suddenly I was off the mainline to Retirement City, and shunted onto the sidetrack of the 7% incline of applying for disability.
Why I said I was unable to get a job: first and foremost I have a full time job doing paperwork to make things happen for my husband.
Second, okay, so I can't walk or stand for long because of various accidents that have left me bunged up and arthritic, but I'm not entirely sure that counts because there are plenty of people who can't walk who are employed. In my present condition I admire them quite a lot for making the effort, because I now have an idea of what it takes, but my mind and my fingers still work – sporadically most days, but that's not uncommon at all at any age – and that's enough to work in this society. Except...
Third, I'm over 60. I'm not the employee most places want. It's hard to find a job at any age for most people right now, but more so for what my husband calls the nouveau elderly, and if you doubt me take a random poll of people over 60 looking for work.
So I didn't want to apply for disability, but suddenly I found I had. I screwed up, and I didn't fix it, because I didn't understand how badly I had screwed up. I might be able to get disability because I am kind of disabled, but it would mean more of the kind of paperwork I've been swamped with for the last six months, and I'm tired, and we're broke. I simply wish to retire.
Then, this morning I remembered that I had the number of the man at Social Security who processed my husband's disability claim (my husband qualified easily, and all I can tell you about that is that if you can qualify for disability easily, your life sucks and blows).
I tried calling that number, and the man answered, and I told him what I wanted to do, and he was kind and humorous and helpful and fifteen minutes later, I was retired.
My head's been spinning the rest of the day. My friend Sonya is here visiting and she's heard me say, “I'm not unemployed anymore! I'm retired!” so many times to so many people that I expect her to say, “Enough already!” but she's been a really good sport about it and says she's happy for me.
So if you're thinking of retirement and the Social Security website lures you in with their red, white and blue promises of how easy it is, go ahead and retire online, but be vewy, vewy careful (Elmer Fudd was big for my generation, also).
Be prepared, also: if you watch the cute Patty Duke video telling you how easy it is to retire, you might be walking around the next few months singing in your head, “Because they're cousins, identical cousins just the same...” And if you don't remember that, you might not be part of my g-g-generation.

The Grinding Wheel Grinds Slow But Small

Every year it seems that life has become so much more complicated that it couldn't possibly - watch out!
Know what I mean?
I learned today that I do not qualify for Medicaid because I am not blind, or 65, or disabled. Not being able to walk very well or to be able to stand up for long or to do much is not the same thing as being officially disabled. And even if I am, in fact, disabled, I still have trouble with the label, although I really appreciate my handicapped parking sticker on the days I really need it.
So I'm still uninsured, and I'm having surgery next Wednesday to remove the lump that probably isn't cancer but no one wants to take any chances. The good news: well, it probably isn't cancer, that's the good news. The other good news is that Swedish has a charity program that will take care of the costs of my surgery. So I'm told. This knowledge leaves me free to worry about the surgery itself, not paying for it.
It's enough to worry about.
I did qualify for a little food stamp credit, and that was good news, too.
We're reaching that point now, when most of our assets have been exhausted. The months of attrition are having their effect. Tomorrow I plan to cut off the cable and the land phone line. I will cling to internet a while longer, because I spend so much of my life on the internet, reading or answering emails, researching the odd questions that arise daily, looking up information which I have to save and print and pass along to other people - it is my connection to the outside world.
I was told to rest up before my surgery, so I would react to it better. I laughed. Rest up - yeah, that's a great idea. I must try that.
Seriously, I suppose I must. It won't be a great big surgery, but really, is there such a thing as "minor surgery?" Isn't having the body cut open and having a piece of it removed, doesn't that sound sort of "major?"
I am blessed in that my friend Sonya has agreed to drive me in to the hospital and back on the day. That was my biggest worry, truth to tell. I've done it so many times for Rick, but he's not healthy enough to do it for me - and he might have to do dialysis that day. So.
As a reward, Sonya will get to spend time with me after I have been given painkillers. I have been told I am quite amusing when stoned. Although I do tend to order things online and forget so I'm completely surprised when packages arrive. Oh well. That sort of mistake required credit. Remember credit?
Rick and I lay on the bed together tonight, holding hands, and talking about how strange it is that we cannot do everything for ourselves anymore. For so many years we took it for granted that what needed doing, we could do. No more. Suddenly we are, if not old, then unable. Disabled. Odious word, odious condition.
My beloved and beautiful cousin Nancy had her second round of chemo today. She said tonight she was tired. Some time soon, this summer or next, we'll go to the ocean together, and talk about our family, and how great life is, and how beautiful the ocean is, and how fortunate we have been to have one another.
How fortunate we all are to have one another. There, that's my profound statement du jour. Stick around. It's got to get better.

The Moon Is Bigger in New Mexico

My brother and sister-in-law, Allen and Barbara, have lived in New Mexico for many years. I've been there to visit twice, once back in 1993, when I took our sons, JD and Drew, on a train trip across the country to visit Rick's relatives in Ohio and to visit Allen and Barbara on the way home. It's very convenient to go by train, because the train stops in their town, Raton.
The second time, which I must have blocked from my memory when I first wrote this post, was three weeks before my mother's death, when she was staying with Allen and Barbara, in 2001. But that is a story for another time.
Their home is on a hill on the northwest side of town, where they have a view of the mesas in the distance where the interstate trails off to the south, to Las Vegas, and Pecos, Santa Fe, and Albuquerque. But from their house you see "miles and miles of nothing but miles and miles," sky and mesa and the land stretching out before you.
As perhaps you can see here.
My brother took this picture the other evening, and sent it out "with apologies to Ansel Adams." I told him that no apologies were necessary, and asked if I could share the image with people, and he said please do.
So here it is, Moonrise Over the Mesa, by my brother, Allen Litchfield.

Thank You for Listening to Me Bitch

Sometimes a catch phrase catches on:
"You might be a redneck..."
"Here's your sign,"
"Would you believe?"
"Where's the beef?"
"Did I do that?"
And so on.
I have decided that my new catch phrase is, "Thank you for listening to me bitch." Last night I was talking to Rick, and every once in a while I would realize I was complaining or ranting about something, and I would say, "Thank you for listening to me bitch." He says it's OK, I do the same for him, and that's true.
It's not written into the wedding ceremony, or at least any ceremonies I've seen, but part of being married is listening to each other complain, gripe, whine, bitch - whatever you're calling it in your relationship. It's a loving thing we do for each other.
Some people will abuse the privilege. Our older son, JD, tends to rant, and as he rants he builds up a head of steam and starts pacing around the room, and after ranting and pacing for quite a while he paces right out the door, ranting over his shoulder as he goes, and you're left sitting there in the silence wondering what that was all about.
It was about bitching. I wish he'd learn to say, "Thank you for listening to me bitch." I'd feel better.
You know how it is - you marry someone, you figure you made a choice. While you may have chosen to give birth, you were only the passive container of these little aliens who became your children, and their personalities often have traits that if you'd had a choice, you'd have said, "No, thanks."
If they're 28 and living with you again and subjecting you to traits you wouldn't have chosen, like marathon pacing rants, you might wish for a little acknowledgment on the kid's part that you're doing something for him while he sputters, pops, whines, and disgorges his discontent.
Well, he doesn't acknowledge that we've done anything for him, but it's made me think that when I'm ranting about something I owe my listener a thanks, at least, and if it's my husband, I owe years of thanks for listening to me. So the least I can do is say it.
Thank you for listening to me bitch.

Setback

My husband has had a setback in his dialysis progress, which you can read about on the other blog.
I am just tired. Today has been spent digging through papers, sorting, tossing, making phone calls, answering phone calls, doing over the phone an application I already did on paper wrong, so it had to be done over.
Rick and I are both feeling a little down over how things have gone. We felt he was so close to getting onto the overnight cycler machine, which, for him, meant he was close to going back to work. Now that hope is dashed, at least for the time being.
My own struggle is with paperwork. There is so much of it. And that's all I'm going to say about that.

My Special Peanut Butter and Jelly Sandwiches

Picture by Nancy Reeder

My cousin Nancy sent a nice big Easter package with gifts and games for our grand daughter, and there was also a sealed brown paper lunch sack for me. When I opened it, out came a mini-jar of jam and a single serving container of peanut butter, and a copy of this story:

My Special Peanut Butter and Jelly Sandwiches
As a young girl I took many family trips. I have many fond memories of these trips. But it is my own special little trips close to home that I cherish and remember the most.
There were days when I just couldn't deal with things and would want to "run away from home."
My beautiful loving mom would sense the need for me to follow through with my plans. I am sure she realized it was my way of coping with what ever was on my mind that day. I would say to her, "I think I'm going to run away today, Mom." With her sparkling green eyes and loving smile, she would reply, "I can help you pack if you want me to. Would you like me to make you a peanut butter and jelly sandwich?"
Together we would pack a brown paper sack with some clothes as well as make that peanut butter and jelly sandwich.
Mom would give me a big hug and kiss, then say, "I love you," and "You are always welcome to come home."
You have probably figured out by now that I only went to the end of the front porch. She was a very wise woman.
I am 62 years old and dealing with cancer. Yes, I feel like running away, but I think I will have a peanut butter and jelly sandwich instead.

*
You can stop reading this right there if that's enough for you.

I sent this story to several friends with this added message:
My cousin Nancy is fighting colon cancer now, and she knows that my husband and I are going through our own hard times, and she wanted to cheer us up by sending us this story and the peanut butter and jelly. She did.
Her wise, beautiful, mother was my father's sister, my aunt Vivian, whom everyone called Chick. Chick had multiple sclerosis and passed away at the age of 43. Chick was in a wheelchair all of Nancy's childhood, and I can see why Nancy might have wanted to run away sometimes.
As I thought about this, I thought, you know, this reminds me of the emails that come around on the internet, and, just for the fun of it, I'm going to put this out there, and ask the people to whom I send it to pass it on to people who might enjoy it, and then see how long it takes for it to come back to me from a complete stranger who has read it and been cheered by it. Then I can say to Nancy, "Look, your story has been cheering people up around the world." And that might cheer her up.
  Probably won't hurt peanut butter and jelly sales, either.
  Are you game? Two requests: send me an email saying "thank you, Nancy" at:
shipoftuels@hotmail.com,
 and I'll forward it to her, and then please pass it along. The thank yous will tell her what an important person she is, and passing it along - well, we'll see what that does! Thank you!
blessings, love, hugs
Mary
*
Well, I sent that out last night, and as of this morning I've had over 30 replies from people saying thank you to Nancy for this story. I started to forward them to Nancy, and then realized that I would be clogging up her email inbox, so I started copying and pasting replies into a word doc. Then I copied all of them (so far) and pasted them into one email to Nancy.
My cousin Nancy is an extraordinary person whom I have loved, admired, respected, and looked up to my whole life. She has tackled life with good humor against great odds and adversity, and she still keeps plugging away – even when she'd rather run away.
As I read people's replies to Nancy's story, I found myself tearing up. That's not unusual these days; my husband is ill and the challenges of getting along are sometimes dire. But the way people pull together to provide encouragement, inspiration, and love to one another in the hard times – man, that's almost enough to make me revise my occasional conclusion that people are no damn good.
Thank you, Nancy, thank you, everyone who is being touched by Nancy. Sometimes when you're somewhere past the end of your rope all it takes is one person to love you, understand how you feel, and make you realize you're not facing your troubles alone, to help you regain your grip.
So thank you.